thank you for the advice, We do have a ceoliac society here and I am a member cos of my daughter. I have IBS and have had alot of issues with food over the years and have flare us from time to time, somthing alot dont get. It has been hard to deal with but am actually glad I have it strange I know but it has helped me to better understand my daughter and her tummy pain. and in the process a new world of gluten free foods. I know when my mum was diagnosed her bread looked like a sponge with holes all in it and tasted like cardboard, it was pretty yuck. But i have eated gluten free foods and tried things out i can know share with my daughter some things she has liked some not. but i am glad my mum has been able to help me with my own issues as she has ibs as well as celiac disease and other issues, but i think it brings us a bit closer cos we understand all the tummy issues and food issues. it is hard with food at times cos your body acts strangely to food you would think shouldnt be a issue but it is.
wow you do have alot in your family with coeliac disease, my mum thinks her father had it also but more in the form of the rash and bloating were the only things she can rememeber he was never diagnosed though. In all honest i do think i might have coeliac disease i had the blood test before i went gluten free and it was negative but it can come up at any age. i never had a endoscopy cos they wont do it unless its postive . i am at a high risk anyway cos of my mum and daughter, so to me i am a moving target. But i decided when my daughter was diagnosed to just treat myself like i am a ceoliac for my health. my husband and oldest has gone gluten free also to support her in this diagnoses and for her safety so no cross containmation at home.
i have had gastro 4 times in my life and 3 out 4 times i was in hospital it was that bad. first time i had gastro i nearly died at the age of 4, but God kept me alive. last time i had it about a year before i was diagnosed with ibs i had 7 bags of fluid and thought i was on deaths door, they didnt even know what caused it as i couldnt keep anything down. it was the worst i had in years.
so I Have had a senstive stomach for awhile my doctor told me to look up the low fod map diet on gooogle that was the only help i got. the low fod diet is a process of elimation to see what affects you and gluten was one of them. but had to research it all myself. not long after my mum was diagnosed with ibs also. basically means alot of foods can trigger pain so i have to balance my food out so i dont get pain.
My daughter has had the blood test and endoscpy and been confirmed officaly.
its always great to talk to others that understand though.