oakleaf
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Posts posted by oakleaf
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Hey Bro! I also have fibromyalgia and Hep C. I have had my neck broke and fused and my back operated on. All of which should have me paralyzed, if not dead, but God brought me through. It took continuing faith in Him, but He came through. I say this in hope to encourage you to not give up.
My breakthrough came after I gave up everything that did not bring honor to Him. This was done by the changing of my heart and mind through the work of the Holy Spirit. He brought to me convictions of what I was holding onto that allowed sin into my life.
God Bless!
In His Love,
Alan
i understand what your sayin but i dont feel like that.......latest problem i have torn muscles in my spine and a torn rotatorcuff im crippled and cant walk real well. my wife has a cold...and she makes me cook dinner for everyone while she lays down on the couch and watches tv......how can GOD help me when i gotta live with this crap.....oak
God can do anything, brother, never forget that, but I don't believe He wants you to be abused. I ache for you every time I read your posts. If you know you can't, and shouldn't, do these things....don't do them. I continue to pray for you daily and for your wife as well.
leaving her is an option always is...but where would i go?????how would i get there?????how can i get my special equipment out ??????? ive put my foot down many times and ive endured the nasty names callin and stuff......i need a vehicle to move out i need a place to move to and i have special equipment for cripples that aint small and light and need special transportation.....you think leavin is easy think again.......i also have my grandkids to think about who will take care of them while everyone else goes to work......i dont know what to do.....oak
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Hey Bro! I also have fibromyalgia and Hep C. I have had my neck broke and fused and my back operated on. All of which should have me paralyzed, if not dead, but God brought me through. It took continuing faith in Him, but He came through. I say this in hope to encourage you to not give up.
My breakthrough came after I gave up everything that did not bring honor to Him. This was done by the changing of my heart and mind through the work of the Holy Spirit. He brought to me convictions of what I was holding onto that allowed sin into my life.
God Bless!
In His Love,
Alan
i understand what your sayin but i dont feel like that.......latest problem i have torn muscles in my spine and a torn rotatorcuff im crippled and cant walk real well. my wife has a cold...and she makes me cook dinner for everyone while she lays down on the couch and watches tv......how can GOD help me when i gotta live with this crap.....oak
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HEALING PROMISES
I believe
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still praying for you, oak , in england i have what they call a contact care alarm, its connected to home phone , i wear an alarm butten round my neck. if i have a fall i press that and ppl in charge of it contact my family or send doc out, do they have something like that in us its run by local gov,why not get someone to look into it bless you
its called life alert here in the states and my wife thinks its a waste and that i dont need it......oak
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We need to stand in the gap for you, friend, for your total healing! I am speaking to God about you..
thanks axe....at this point i aint sure what to do.....oak
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Isn't there some way of getting a cell phone? They're a necessity now days. For you and the kids. Even a prepaid one, tho the cost is outrageous for this kind.
You are on my prayer list, as well as your family.
my wife doesnt think i need one she wont except that im getting worse.... thanks......oak
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i retore my rotator cuff and spine muscles again... my fibromyalgia and ankylosing spondylitis aint cuttin me any slack, ive asked the doc if i could try a different med, and since i cant use my canes anymore or should i say using them is gettin more and more difficult due to muscle pain and weakness in the arms, ive asked my doc if usin crutches would be better....i should know in a few days for her answer i hope....please pray that the doc will allow me to try this different med and the use of crutches. im really scared that i am becoming unable to watch my grands when everyone else is at work....and this may sound selfish but i could really use a cell phone in case of emergencies and im unable to get to a regular phone.....after all these years of fightin these diseases im ready to surrender to them, im tired of fighting and my marriage is not goin real well my whole world is crumblin and i dont know what to do anymore....thanks for listening.....oak
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Having only been with Worthy for a little over a month, I'm not quite sure if this is the right forum to ask this question, but anway, here goes:
When I leave the Worthy Christian Forums site, I do not log off of it.
Sometimes when I subsequently return to the WCF site, I find that there are times when I'm asked to log back in again, but then at other times I'm still logged in.
I'm just curious as to why this happens.
On the other internet forums of which I am a member this seldom, if ever, occurs.
I'd be interested to find out if there are any other members of WFC to which this same thing happens.
it happens to me alot i have noticed that if i logged on then leave without loggin out i can go right into it but in a 24hr time frame it automatically loggs ya out so ya gotta log back in and a few other times its caused by a system update but i dont think it is a real serious problem.....oak
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doc told me to stay off my feet until my torn muscles in my spine and shoulder are healed, i told my wife this so she told me to clean the house, take the trash out, do the dishes and cook dinner...i can barely walk standing puts so much pain and pressure on my spine that makes my legs buckle and i fall down which causes more injuries......last night when i went to sleep i used a spare blanket to caver up with and i got chewed out this morning for it and now i dont have a anything to keep me warm when im tryin to sleep.....can anyone tell me why i should keep living in these conditions.....
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oak, i'm praying for you.
all of you that are prayin id like to say thank you perhaps an answer will come to me......oak
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oak... just hang in there bud...i will pray too....blessed is the man who trust in him......i sorry they are not being good.......but God is above all.....Pro 3:5 Trust in the LORD with all thine heart; and lean not unto thine own understanding.
shanee, i try real hard to rely on the LORD but its times like this i dont know what to do....part of me says stay and try to get over the abuse and the other part says leave and start a new life.....which one is satan and which one is GOD tallin me what to do......oak
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Oak,
I cannot advise you about divorce or what to do in your marriage only you can decide that for yourself. I do know about illness and how those around us can act. Are you still in counselling? if so I think it might benefit you to go even if your wife won't go. Have you ever had your drs talk to your wife about your illness and the limitations you have now? Sometimes having a dr tell the family makes a difference. My sister has been a similar situation and after more than a few years she finally just had to yell at her husband to make him listen not advocating a fight or that you do as my sister did though.
Your daughter depending on her age should have to clean up after herself and help around the house but having a grown daughter still at home thats easier said than done! Knowing what disabled feels like I can relate to how you are feeling, hating ones life and wishing for it all to just go away. Even after these many years I still have days where its just a chore to even think about getting out of bed. The thing I hold on to is God and cry out to Him when its all so overwhelming I feel I cannot cope anymore. I realize on those days that I am thinking about myself more than I am God or anything else. I receive a booklet through Chuck Missler ministry every month and this month his wife Nan wrote something that hit me full force and I would like to share it with you, it more than likely won't change anything but it is something to ponder on. "But the Bible says that no matter how sick we are, no matter what our circumstances are and no matter what others have done to us, the only way we can find ourselves is by loving God first and then, loving others." Nan Missler
The article is about making faith choices and as she put it "to stand strong and let the Lord use us regardless of what is physically going on in our lifes." In the article the Mrs. Missler talks about her friend with cancer and how the friend chose to be a vessel of God's love. Perhaps that is one of our greatest lessons we need to learn that despite our own problems we need to be a vessel for God's love to work in us and through us. I know this is so much easier to talk about than to put into practice especially when we feel so bad and the ones that are supposed to love us and help us often fall by the wayside and try and trip us up in so many ways. I am fond of saying 'kill them with kindness' now I have used that for years but it wasn't until I accept Christ into my life that I realized that is the way we all are supposed to be. I used that approach on my former mother in law and it took a few years before I saw any fruit but it did work, so perhaps you could try that approach with your wife and daughter. Now after saying all that I can see where it might just be too hard for you to deal with at this moment in time but its worth keeping in the back of your mind? If you need someone to talk with or whatever I am usually online most all day until around 4 pacific time so just pm me. I will pray for you and your family.
mizzdy, ive tried everything and she wont listen to anyone she talks to her parents alot then comes home and accuses me of throwin a pity party....all my kids a grown up with kids of there own one lives here with her 3 kids and i gotta watch them, cook for them, and clean up after them or i get chewed out for not doin it.....oak
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Oak, you are always on my prayer list. If you can, continue to go to counseling, even if your wife won't go. I know how you feel, my ex husband went with me a couple times, but not with the intention of improving the marriage, but of proving me wrong.
I don't understand your daughter acting like this. How old is she? I will put her on my list, too.
heya kat, ever since i became disabled my wife has never been supportive in fact its just the opposite, everytime i try to tell her of how im feeling, or that i injured myself in a fall she totaly ignores me cuts me off in mid sentence then tells everyone how lazy and useless i am....my daughter is 27yrs old and her 3 girls live here and its upto me to try and clean up after them which really does a number on my back and shoulders.....oak
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on a recent post i made callled am i alone i stated all my illnesses, i had a serious fall a few weeks ago that did some serious muscle and ligament damage. i saw my doc and she wants me to have at home physical therapy and wants me to get a hospital bed to help me sleep at night...what im at a loss about is my wife of 18yrs refuses to pt and getting the bed even if it means my feelin i bit better if i got them....there aint a whole lot i can anymore like bending standing a can barely walk i cant do any real physical work anymore but she constantly makes me do it anyway...i should say she yells at me calls me names and get down right mean and nasty if i tell her i cant do those things...my oldest daughter lives here and she wont lift a finger to help and they are perfectly healthy....i know GOD doesnt like divorces and im tryin to keep my marriage but the worse i get the worse they get....ive tried counceling but my wife refuses to come to any sessions.....i just dont know what to do....should i stay and continue with this unhappy marriage or should i leave them....i hate bein disabled and i hate my life and where it is goin.....oak
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just wanted to say thank you george. this forum will be very helpful to us who are sufferin from invisible illnesses. in every aspect. just knowing that others need to know that they aint alone and finding a place they can turn to is wonderful.....thank you george......oak
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It has my vote and it could be a support for carers too.
your right it would be for those who have family members and want to understand more on what the person is goin thru and a place for them to get encouragement as well....morningglory everyone has a vote thanks for the input ya all....oak
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heya george, im not reall good with words and since it was my question that kinda sparked others interest i eas wondering if it is possible to start a new forum, i started a post "am i alone" that has asked if there were others with chronic illnesses that felt alone and would like to share there fears and knowledge in a christian way kind of a support group where we can help each other get thru the tough times that chronic illness can give us...i know there are other support sites out there most are not christian based...well i figured that worthy has been kind to me that i would like to return the favor in away...there are alot of people out there that could use a shoulder from someone that is having the same problems as they are and the feeling of aloneness is is way over whelming and talkin to others who actually understand can be a type of healing for them...please read my post for a better understanding of what im tryin to say....please pm me if ya think its possible....thanks....oak
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i almost died from my last remicade infusion since ive been off of all my meds...i see my doc on wed. and im gonna try to be put on one med that will help me sleep without pain, spasms, and spinal pressure...and i will be put in a wheel chair permanently then i gotta figure out what im gonna do after that......oak
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Hi Oakleaf..
I too have been suffering from autoimmune diseases for the past 7 years. Sjorgens, Lupus, vasculitis-neuropathy. I'm wondering if your rheumatologist has tried immune suppressants such as cytoxan or imuran? I did not respond well to these meds but many patients do well. Its a matter of calming down the T cells.
God Bless your heart and give you relief.
Dan
to all of you thanks for the responses, i know of a few sites that offer support and vast amount of knowledge thru experience, most are not christian based and the ones that are aint real popular and 1 out of 10 posts might get 1 response, im thinkin worthy is a perfect place for a forum like this because its the best christian site i know of....the people here actually care about others and freely give of themselves, other places dont....dgolvach,,,,ive had so many different meds that dont work im runnin out of options and with most autoimmune diseases what works for one doesnt mean it will work for all...my rheumy is the best in the state when it comes to my diseases, and weve talked extensively on which meds wont work and which ones might work, the list of donts is ever increasing and the mights are gettin pretty slim.....i know george is a very busy man and i aint sure if i should bother him with this idea....that and i aint sure how to go about it.....oak
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I have restless leg syndrome, early parkinson- hand tremors etc and immune issues!
Gosh I sound so horribly broken down, but have just learned to live and work through this all~
i have the following deseases and health issues.....ankylosing spondylitis, rheumatoid arthritis, osteo arthritis, fibromyalgia, restless leg syndome...these are auto immune desease that has no cure.....chronic back pain, tremors/spasms, osteoporosis, depression/anxiety, high cholesterol, lyme desease, scoliosis.....after all of this i decided not to do any more testing its really messed up havin to deal with pain and fatigue 24/7 and knowing there is nothin that can help it...unless i fill myself up with heavy duty meds......oak
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Oakleaf I am with you in this! I have been recently diagnosed with Parkinson's disease. Today I have felt very alone although my husband is here. PM me any time and I will pray for you. I'd also support any little group that gets started here in Worthy!
ive been told or it has ben hinted at that i may have parkinsons and i fugured since i already got a mile long list i dont need another thing added to it, so i never had the testing done....well i could have parkinsons, huntintons, ALS(lou gerhigs disease), ms, and few others....if i got it i dont want to klnow...you can pm me anytime if your frustrated or hurtin and need someone to talk to...i'll be here....oak
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i know this psalm very well, to me everytime my illnesses get the better of me im always led to this psalm it has special meaning to me and alot of others...it is a bit different than what ya have wrote down but it is always good to see how the word can mean different things to each person that reads it, even tho everyone reads the same thing each line means different thing...i guess its a way that GOD speaks to us in HIS own way that makes it even more special to us......oak
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I know this is not what you are asking for, but there is a new autoimmune drug that was approved last year for some obscure blood disease, but it has also been tested on lupus, nephritis, and rheumatoid arthrits, etc. all with very positive results, and it does not have the side-effects of Enbrel. The drug is called Soliris. I'm sure it won't reverse the damage that has already been done, but it should prevent further damage and protect your kidneys and prolong your life and quality of life.
heya xan, ive had so many different meds and treatments over the years and one almost killed me earlier this year....info like this is helpful i can always ask my doc about it....thanks......oak
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Oakleaf, I just tried calling my older sister , she has lots of auto immune illnesses and has a chat where she goes for this and I will come back when she calls me and let you know where the forums are.... its a support group for those going thur what you are...
heya eagles, i know of a couple places im just wonderin if there are people here at worthy that would like to talk and get support without goin to another place, i like worthy and i feel this is somethin that is lackin here...of course there will always be people who think that our faith is lackin which it aint and that GOD will heal us but GOD gave us these illnesses for a reason and i think we need to explore the reasons.....stuff like that....thanks....oak
im ready to give up
in Have a problem? Looking for advice?
Posted
crutches just may tear the shoulders up more i dont know. im trying to stay out of the wheelchair so i'll try everything to stay out of it....ive had been on remicade for a little over a year but i started getting breathin problems and had to stop it....
ive tried almost everything there is for my problems appearantly im in that 1% that nothin works so now i just have to grit my gums(i aint got teeth) and try to live a semi normal life.....im waiting for a response from my doc...with my doc sayin that the wheelchair is my only resort my wife wont except me using one around the house...today my hip went out i cant walk i cant put any wait on that side at all so now i will let my doc know about this as well and maybe i wont have to wait weeks before i get a response.......im really ready to give up.........oak