oakleaf

crutches just may tear the shoulders up more i dont know. im trying to stay out of the wheelchair so i'll try everything to stay out of it....ive had been on remicade for a little over a year but i started getting breathin problems and had to stop it.... ive tried almost everything there is for my problems appearantly im in that 1% that nothin works so now i just have to grit my gums(i aint got teeth) and try to live a semi normal life.....im waiting for a response from my doc...with my doc sayin that the wheelchair is my only resort my wife wont except me using one around the house...today my hip went out i cant walk i cant put any wait on that side at all so now i will let my doc know about this as well and maybe i wont have to wait weeks before i get a response.......im really ready to give up.........oak

i understand what your sayin but i dont feel like that.......latest problem i have torn muscles in my spine and a torn rotatorcuff im crippled and cant walk real well. my wife has a cold...and she makes me cook dinner for everyone while she lays down on the couch and watches tv......how can GOD help me when i gotta live with this crap.....oak God can do anything, brother, never forget that, but I don't believe He wants you to be abused. I ache for you every time I read your posts. If you know you can't, and shouldn't, do these things....don't do them. I continue to pray for you daily and for your wife as well. leaving her is an option always is...but where would i go?????how would i get there?????how can i get my special equipment out ??????? ive put my foot down many times and ive endured the nasty names callin and stuff......i need a vehicle to move out i need a place to move to and i have special equipment for cripples that aint small and light and need special transportation.....you think leavin is easy think again.......i also have my grandkids to think about who will take care of them while everyone else goes to work......i dont know what to do.....oak

i understand what your sayin but i dont feel like that.......latest problem i have torn muscles in my spine and a torn rotatorcuff im crippled and cant walk real well. my wife has a cold...and she makes me cook dinner for everyone while she lays down on the couch and watches tv......how can GOD help me when i gotta live with this crap.....oak

its called life alert here in the states and my wife thinks its a waste and that i dont need it......oak

thanks axe....at this point i aint sure what to do.....oak

my wife doesnt think i need one she wont except that im getting worse.... thanks......oak

i retore my rotator cuff and spine muscles again... my fibromyalgia and ankylosing spondylitis aint cuttin me any slack, ive asked the doc if i could try a different med, and since i cant use my canes anymore or should i say using them is gettin more and more difficult due to muscle pain and weakness in the arms, ive asked my doc if usin crutches would be better....i should know in a few days for her answer i hope....please pray that the doc will allow me to try this different med and the use of crutches. im really scared that i am becoming unable to watch my grands when everyone else is at work....and this may sound selfish but i could really use a cell phone in case of emergencies and im unable to get to a regular phone.....after all these years of fightin these diseases im ready to surrender to them, im tired of fighting and my marriage is not goin real well my whole world is crumblin and i dont know what to do anymore....thanks for listening.....oak

it happens to me alot i have noticed that if i logged on then leave without loggin out i can go right into it but in a 24hr time frame it automatically loggs ya out so ya gotta log back in and a few other times its caused by a system update but i dont think it is a real serious problem.....oak

doc told me to stay off my feet until my torn muscles in my spine and shoulder are healed, i told my wife this so she told me to clean the house, take the trash out, do the dishes and cook dinner...i can barely walk standing puts so much pain and pressure on my spine that makes my legs buckle and i fall down which causes more injuries......last night when i went to sleep i used a spare blanket to caver up with and i got chewed out this morning for it and now i dont have a anything to keep me warm when im tryin to sleep.....can anyone tell me why i should keep living in these conditions.....

all of you that are prayin id like to say thank you perhaps an answer will come to me......oak

shanee, i try real hard to rely on the LORD but its times like this i dont know what to do....part of me says stay and try to get over the abuse and the other part says leave and start a new life.....which one is satan and which one is GOD tallin me what to do......oak

mizzdy, ive tried everything and she wont listen to anyone she talks to her parents alot then comes home and accuses me of throwin a pity party....all my kids a grown up with kids of there own one lives here with her 3 kids and i gotta watch them, cook for them, and clean up after them or i get chewed out for not doin it.....oak

heya kat, ever since i became disabled my wife has never been supportive in fact its just the opposite, everytime i try to tell her of how im feeling, or that i injured myself in a fall she totaly ignores me cuts me off in mid sentence then tells everyone how lazy and useless i am....my daughter is 27yrs old and her 3 girls live here and its upto me to try and clean up after them which really does a number on my back and shoulders.....oak

on a recent post i made callled am i alone i stated all my illnesses, i had a serious fall a few weeks ago that did some serious muscle and ligament damage. i saw my doc and she wants me to have at home physical therapy and wants me to get a hospital bed to help me sleep at night...what im at a loss about is my wife of 18yrs refuses to pt and getting the bed even if it means my feelin i bit better if i got them....there aint a whole lot i can anymore like bending standing a can barely walk i cant do any real physical work anymore but she constantly makes me do it anyway...i should say she yells at me calls me names and get down right mean and nasty if i tell her i cant do those things...my oldest daughter lives here and she wont lift a finger to help and they are perfectly healthy....i know GOD doesnt like divorces and im tryin to keep my marriage but the worse i get the worse they get....ive tried counceling but my wife refuses to come to any sessions.....i just dont know what to do....should i stay and continue with this unhappy marriage or should i leave them....i hate bein disabled and i hate my life and where it is goin.....oak

just wanted to say thank you george. this forum will be very helpful to us who are sufferin from invisible illnesses. in every aspect. just knowing that others need to know that they aint alone and finding a place they can turn to is wonderful.....thank you george......oak

your right it would be for those who have family members and want to understand more on what the person is goin thru and a place for them to get encouragement as well....morningglory everyone has a vote thanks for the input ya all....oak

heya george, im not reall good with words and since it was my question that kinda sparked others interest i eas wondering if it is possible to start a new forum, i started a post "am i alone" that has asked if there were others with chronic illnesses that felt alone and would like to share there fears and knowledge in a christian way kind of a support group where we can help each other get thru the tough times that chronic illness can give us...i know there are other support sites out there most are not christian based...well i figured that worthy has been kind to me that i would like to return the favor in away...there are alot of people out there that could use a shoulder from someone that is having the same problems as they are and the feeling of aloneness is is way over whelming and talkin to others who actually understand can be a type of healing for them...please read my post for a better understanding of what im tryin to say....please pm me if ya think its possible....thanks....oak

i almost died from my last remicade infusion since ive been off of all my meds...i see my doc on wed. and im gonna try to be put on one med that will help me sleep without pain, spasms, and spinal pressure...and i will be put in a wheel chair permanently then i gotta figure out what im gonna do after that......oak

to all of you thanks for the responses, i know of a few sites that offer support and vast amount of knowledge thru experience, most are not christian based and the ones that are aint real popular and 1 out of 10 posts might get 1 response, im thinkin worthy is a perfect place for a forum like this because its the best christian site i know of....the people here actually care about others and freely give of themselves, other places dont....dgolvach,,,,ive had so many different meds that dont work im runnin out of options and with most autoimmune diseases what works for one doesnt mean it will work for all...my rheumy is the best in the state when it comes to my diseases, and weve talked extensively on which meds wont work and which ones might work, the list of donts is ever increasing and the mights are gettin pretty slim.....i know george is a very busy man and i aint sure if i should bother him with this idea....that and i aint sure how to go about it.....oak

i have the following deseases and health issues.....ankylosing spondylitis, rheumatoid arthritis, osteo arthritis, fibromyalgia, restless leg syndome...these are auto immune desease that has no cure.....chronic back pain, tremors/spasms, osteoporosis, depression/anxiety, high cholesterol, lyme desease, scoliosis.....after all of this i decided not to do any more testing its really messed up havin to deal with pain and fatigue 24/7 and knowing there is nothin that can help it...unless i fill myself up with heavy duty meds......oak

ive been told or it has ben hinted at that i may have parkinsons and i fugured since i already got a mile long list i dont need another thing added to it, so i never had the testing done....well i could have parkinsons, huntintons, ALS(lou gerhigs disease), ms, and few others....if i got it i dont want to klnow...you can pm me anytime if your frustrated or hurtin and need someone to talk to...i'll be here....oak

heya xan, ive had so many different meds and treatments over the years and one almost killed me earlier this year....info like this is helpful i can always ask my doc about it....thanks......oak

heya eagles, i know of a couple places im just wonderin if there are people here at worthy that would like to talk and get support without goin to another place, i like worthy and i feel this is somethin that is lackin here...of course there will always be people who think that our faith is lackin which it aint and that GOD will heal us but GOD gave us these illnesses for a reason and i think we need to explore the reasons.....stuff like that....thanks....oak

heya ya'll, im just wondering if there are others here that have chronic illnesses and are finding it hard to talk about how you are feelin....is there a forum where we can go to and possible help each other deal with our pain and confusion....a place that we can go to and can get support and not feel like we are alone in our sufferin...or am i the only one that feels alone and that i have to deal with all my chronic illnesses by myself.....i am sufferin with several auto immune diseases that have no cure and way to many other illnesses that are linked together....i aint lookin for prayer of healin but im lookin for others who are goin thru life with incurable diseases and possibly help each other thru good days and bad days....basically a support group forum or something like it....if you are chronically ill lets get together and see if we cant help each other by sharing our experiences, pain, and anything else that we can think of...even makin jokes about it anything that would help us get thru the tough times......oak