oakleaf Posted September 2, 2008 Group: Advanced Member Followers: 1 Topic Count: 29 Topics Per Day: 0.00 Content Count: 214 Content Per Day: 0.03 Reputation: 7 Days Won: 0 Joined: 03/29/2004 Status: Offline Birthday: 09/01/1963 Author Share Posted September 2, 2008 Hi Oakleaf.. I too have been suffering from autoimmune diseases for the past 7 years. Sjorgens, Lupus, vasculitis-neuropathy. I'm wondering if your rheumatologist has tried immune suppressants such as cytoxan or imuran? I did not respond well to these meds but many patients do well. Its a matter of calming down the T cells. God Bless your heart and give you relief. Dan to all of you thanks for the responses, i know of a few sites that offer support and vast amount of knowledge thru experience, most are not christian based and the ones that are aint real popular and 1 out of 10 posts might get 1 response, im thinkin worthy is a perfect place for a forum like this because its the best christian site i know of....the people here actually care about others and freely give of themselves, other places dont....dgolvach,,,,ive had so many different meds that dont work im runnin out of options and with most autoimmune diseases what works for one doesnt mean it will work for all...my rheumy is the best in the state when it comes to my diseases, and weve talked extensively on which meds wont work and which ones might work, the list of donts is ever increasing and the mights are gettin pretty slim.....i know george is a very busy man and i aint sure if i should bother him with this idea....that and i aint sure how to go about it.....oak 1 Link to comment Share on other sites More sharing options...
dgolvach Posted September 2, 2008 Group: Diamond Member Followers: 1 Topic Count: 110 Topics Per Day: 0.02 Content Count: 1,254 Content Per Day: 0.17 Reputation: 6 Days Won: 0 Joined: 07/28/2004 Status: Offline Share Posted September 2, 2008 Hi Oakleaf.. I too have been suffering from autoimmune diseases for the past 7 years. Sjorgens, Lupus, vasculitis-neuropathy. I'm wondering if your rheumatologist has tried immune suppressants such as cytoxan or imuran? I did not respond well to these meds but many patients do well. Its a matter of calming down the T cells. God Bless your heart and give you relief. Dan to all of you thanks for the responses, i know of a few sites that offer support and vast amount of knowledge thru experience, most are not christian based and the ones that are aint real popular and 1 out of 10 posts might get 1 response, im thinkin worthy is a perfect place for a forum like this because its the best christian site i know of....the people here actually care about others and freely give of themselves, other places dont....dgolvach,,,,ive had so many different meds that dont work im runnin out of options and with most autoimmune diseases what works for one doesnt mean it will work for all...my rheumy is the best in the state when it comes to my diseases, and weve talked extensively on which meds wont work and which ones might work, the list of donts is ever increasing and the mights are gettin pretty slim.....i know george is a very busy man and i aint sure if i should bother him with this idea....that and i aint sure how to go about it.....oak I understand oaleaf. I was hospitalized 2 weeks ago from an allergic reaction to Imuran. Nearly died actually. I am down to trying to treat the pain. Keep me posted and feel free to PM me anytime. God Bless Dan 1 Link to comment Share on other sites More sharing options...
oakleaf Posted September 2, 2008 Group: Advanced Member Followers: 1 Topic Count: 29 Topics Per Day: 0.00 Content Count: 214 Content Per Day: 0.03 Reputation: 7 Days Won: 0 Joined: 03/29/2004 Status: Offline Birthday: 09/01/1963 Author Share Posted September 2, 2008 i almost died from my last remicade infusion since ive been off of all my meds...i see my doc on wed. and im gonna try to be put on one med that will help me sleep without pain, spasms, and spinal pressure...and i will be put in a wheel chair permanently then i gotta figure out what im gonna do after that......oak 1 Link to comment Share on other sites More sharing options...
kat8585 Posted September 2, 2008 Group: Royal Member Followers: 3 Topic Count: 1,360 Topics Per Day: 0.21 Content Count: 7,866 Content Per Day: 1.23 Reputation: 26 Days Won: 0 Joined: 11/22/2006 Status: Offline Birthday: 04/18/1946 Share Posted September 2, 2008 i know george is a very busy man and i aint sure if i should bother him with this idea....that and i aint sure how to go about it.....oak Send him a pm. Trust me, he will care. Some of the rest of us could ask him too. 1 Link to comment Share on other sites More sharing options...
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